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PATIENT END-OF-LIFE-CARE BILL OF RIGHTS.

PATIENT END-OF-LIFE-CARE BILL OF RIGHTS.

  1. Sufficient fluids will be given to me by mouth, by tube to the stomach or by drip into a vein or under the skin, to relieve thirst and keep me hydrated, unless I decided against it.
  2. My bodily nutrition will be maintained by any reasonable means unless I especially prohibit this or decide against this.
  3. Unless I decline it, I will be given pain control to keep me as pain-free as possible, preferably without the use of sedation.
  4. I will not be sedated unless this is thought necessary. If this need arises either I or my relatives will be informed.
  5. If I am thought to be dying, I will have the right to ask for a second opinion on my diagnosis and the likely outcome.
  6. I have the right to see the pastor of my choice.
  7. I will be involved in all medical and nursing decisions that are potentially life-altering and no medication will be given to me by syringe driver without my agreements or that of a spouse or close relative.
  8. Do not resuscitate orders will not be written up without my consent or that of my relatives.
  9. Any decision to reduce the level of active care, such as stopping antibiotics, or reducing the oxygen supply or withdrawing medication will not be made without my consent or that of my relatives.
  10. Should I lose the mental capacity to participate in my care, for example in situations such as those considered above, my spouse or the relative who is acting for me should be consulted, or if I have no living relatives, an independent Mental Capacity Advocate should be appointed to take these decisions.

7 Responses to PATIENT END-OF-LIFE-CARE BILL OF RIGHTS.

  1. katy samuels October 8, 2013 at 7:12 pm #

    thank you so much for taking the time to do this. my daughter was “put to sleep” on the LCP last year.

  2. Mandi Meldrum October 9, 2013 at 8:35 pm #

    This seems much more compassionate thanLPC and takes into consideration the patients and their families wishes. It is also transparent which is needed in often upsetting and very emotional circumstances. I feel when my nan was put on LPC it was slipped past me sneakily and was not made clear to me at all how degrading and cruel it really was.

  3. Susan Burgoyne October 19, 2013 at 4:56 pm #

    May I add one more clause ( No. 11)
    Namely, that, where humanly possible, I should be treated in my home town’s hospital, where possible. Please do not remove me to a hospital outside my home town, when suitable facilities are available locally. If I must be moved, please arrange for transport for my relatives to visit me, particularly if they are elderly also, and do not drive! It is so distressing to be terminally ill, without having to be apart from my family at such an important time. This for my peace of mind, but also for that of my family, perhaps I will then get the chance to say “Goodbye” to them before the end! (Written on behalf of my late husband, Robert (Bob) Burgoyne. This was exactly what happened in his case, and I, his wife, was not even informed of the transfer until the following afternoon. He died, of pneumonia as a result of late-diagnosed, and untreated lung cancer on May 7th, 2012, at University Hospital, Coventry. This, despite having a local hospital (Rugby “St. Cross”), to which he was initially admitted the previous Friday, before being transferred early on Sunday morning. You may no longer be able to speak out for yourself, Bob, but I will speak out for you, and any others who are likely to end their lives in this way. Yours forever, Sue.

  4. x November 30, 2013 at 8:37 pm #

    4 is too vague …gives them carte blanche like they already have

  5. x November 30, 2013 at 8:38 pm #

    5 too vague, as they just get their mate down the corridor to back them up…

  6. x November 30, 2013 at 8:42 pm #

    Basically, the palliative care crew need to be honest about what they do…those drugs kill…loads of cancer patients have never been told that….they dont like the fact that that is all they have ever done …euthanased without consent …ie murdered. Huge number of old dogs in the hospice movement who you simply wont be able to stop doing it under the guise of ‘care’.

    ‘pain relief’ has moved on half a century since Bodkin Adams….why not BAN all these opiods altogether and give patients epidurals? Because they’d take longer to die and cost more money, I’m afraid, and we can’t allow that, can we?

  7. x November 30, 2013 at 8:43 pm #

    I’m for getting rid of hospices and end of life care altogether…..palliative care should never have been recognised as a branch of medicine in the first place.

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